5/7/07

FIGHTING AGAINST MUSCLE DISEASE

John Butterfill has joined the fight against muscle disease and signed a House of Commons Early Day Motion, calling on the Government to pay more attention to young adults with disabilities who often face difficulties when transferring from children to adult services.

The Motion has cross party support and urges the Government to establish a network of health and social care professionals with an expertise in transition to ensure that all young adults with neuromuscular conditions receive appropriate care, support and information tailored to this crucial stage in their lives.

John said:  “The nature and quality of health service provision too often fails teenagers with disabilities.  The standard of services for young adults with conditions such as muscular dystrophy is not as well developed as those in paediatric clinics.  I believe it is essential that the Department of Health and local authorities work to bridge this divide and improve joint working between children’s and adult services.